COPD360social welcomes new member Soos who joins 59,298 current members of our community. Weโ€™re glad you're here!

Grandma05

Grandma05answered the question Spirometry tomorrow petrified

oh thankyou Brydy, yes it was a traumatic time, my mum continued to smoke through the mild to moderate even beginning of severe stages, so that definitely didnโ€™t help, I stopped 2014 and am on the go most days , I really wouldnโ€™t have gone to the gp if …
brydyDebbieB.-Connecticut State CaptainDavid Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question brydyand 2 others also answered the question

3 hours ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Nurses Week May 6th to the 12th.  Nurses are the backbone of the medical field.  Nurses are indispensable.  Thank a nurse for all there help.  

3 hours ago

lizjb

lizjbanswered the question What kind of medicine do they have for nebulizer my doctor want me on trilogy I cant afford it

not an answer, not a place for comment so? Arent nebulizer meds covered under Medicare part B instead of your part D?
DanK HIcopd - Hawaii State CaptainCaroline West Virginia State Captainand 1 other also answered the question DanK and 3 others also answered the question

3 hours ago

Jingles

Jinglesanswered the question Horrible pulmonary function results

Hi. I am 70. Yes I did have the test done. It was negative. Also I was treated with Vfend, blood test and sputum showed possible fungus infection. That cleared up. Recent blood test and sputum sample showed Serraita marcescens The doctor at Temple did …
TonicDkKandy State Captain of South Dakota David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question TonicDkand 2 others also answered the question

4 hours ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Going to events

While I echo what has been mentioned above, I also want to mention that you can actively take steps to try to prevent getting sick. Make sure that you're up-to-date on vaccinations (Pneumococcal, influenza, pertussis, shingles, etc.), have some travel …
brydyRedPower also answered the question brydyand 1 other also answered the question

5 hours ago

Kap

Kap

Ha. Better than yesterday!!

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„GRANOLA๐Ÿฅ„ "Wake up your taste buds!"2 cups whole rolled oats1/2 cup chopped walnuts1/2 cup unsweetened coconut flakes2 tsp. cinnamon 1/2 tsp. salt2 tbsp. canola oil1/4 cup pure maple syrup 2 tbsp. almond butter 1/3...

6 hours ago

Grandma05

Grandma05asked the question: Spirometry tomorrow petrified

Iโ€™ve woken this morning petrified of my spirometry tomorrow,I have severe anxiety too. Iโ€™m 57 years old, diagnosed mild copd in 2019 and nothing much has changed . I felt a few nights off feeling like I was suffocating so the dr has opted for the tests. …

8 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's all in your mindset. Keep the positive thoughts flowing. Start your day with a can-do attitude. You got this!!!
Happy Monday, folks! ๐Ÿ˜€

10 hours ago

Leolady7

Leolady7

Hi, just joined. Hope everyone is feeling well!๐Ÿค—

19 hours ago

Jen Karnig

Jen Karnig

Well

20 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainA BIG Feliz Cinco de Mayo to everyone from Luke Rossi! ๐Ÿคฉ

21 hours ago

Grandma05

Grandma05

Hi everyone itโ€™s been a few years since I joined the group when my ct scan showed emphysema changes. Iโ€™ve been keeping very well but recently had a feeling of suffocating but only at night. My go has given me xray(waiting results) and got spirometry Tuesday. I can walk without being breathless and have no other symptoms but since the copd word arouse Iโ€™ve had very severe anxiety attacks and was wondering if you lovely people had any words of encouragement. My mother passed away with severe emphysema in 2011 she did continue to smoke all the way through till it got bad where I gave up 10 years ago xx thankyou xx

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota World Laughter Day,  we need laughter to make our days a little better.  Keep laughing folks!! 

1 day ago

Anxious Sequoia

Anxious Sequoia

Hello everyone new to the group. Will be seeing a pulmonologist next Thursday for spirometry but am pretty anxious. Was hoping someone can answer a question if mine. I recently gotten a chest Ct with maximum mips that came back clear, is it possible I can still have copd? I been having weird breathing issues going imon recently. Quick intermittent shortness of breath while standing or sitting. When I excercise I feel pretty fine. Any ideas? Not really looking for diagnosis but rather experiences

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Good morning Sunday I hope everyone has a very beautiful Sunday!!! 

1 day ago

LFAOMGA

LFAOMGAKatie is here this morning to wish you a โ€œHappy Cinco De MEOWโ€

1 day ago

Jingles

Jinglesasked the question: Horrible pulmonary function results

Hello, I am new to this site. I just had pulmonary function test done. The results look horrible to me. FVC 66% PREDICTED, PEF 67%, FEF 32% FEV1 48%, FEV6, 66% LVM, TLC 69% PREDICTED, VC61%, FRC 63% RV 85% DLCO-c, 46% PREDICTED, VA 75%, KCO-c, 60% …

1 day ago

David Mannino, MD (Chief Medical Officer, COPD Foundation )

David Mannino, MD (Chief Medical Officer, COPD Foundation )Lizzie was very excited about the Kentucky Derby!  Her horse lost by a nose.

1 day ago

mankeegna55

mankeegna55answered the question Itโ€™s me again. Update from my PCP. So discouraging.

Yes this is good news. Quite a switch from your first pc assesment. I know the feeling. A year ago a scan purportedly showed mild emphysema. I did a battery of tests w a real pulmonologidst...they were normal. A second ct scan in February....no …
Caroline West Virginia State CaptainKristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)brydyand 6 others also answered the question Caroline West Virginia State Captainand 8 others also answered the question

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainHappy Saturday! Wake up with a smile on your face, with a positive outlook on life! ๐Ÿ˜€ Enjoy the simple things...

2 days ago

RedPower

RedPowerasked the question: Going to events

Emphysematous changes and early background COPD on my CT. Lung function testing in a couple of weeks. I am doing everything I can to slow progression - daily exercise, good eating, vaccinations etc I play 8 ball pool and attend our National event …

2 days ago

Bradley J

Bradley J

as usual seems struggling - no Drts norses seem to have an effective answer?

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Low dose of prednisone for maintenance?

My pulmonologist does not like me on pred less really need it At this stage game don't see what its going to hurt doing a maintenance There are alot side affects from steriods.
muddleageddas23BlairT also answered the question muddleagedand 2 others also answered the question

2 days ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota answered the question Dry lips and nose

I have used Petroleum jelly for many yrs. I used to have sever eczema. I use it only for my skin. I do not put it in my nose.
muddleagedJonnie Korinko (COPDF Manager of Public and Professional Education)JeanO53and 2 others also answered the question muddleagedand 4 others also answered the question

2 days ago

Kailuabreathing

Kailuabreathing

just got a new inhaler Breztri 2 puffs a day so far it's kind of magical

'

2 days ago

dezherm

dezherm

I saw a claim that the Inogen One G5 and Caire Freestyle Comfort have new advanced sensing and are approved for 24/7 use. Is this true, and if so what experience have your parents had with them?

2 days ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF Communications created the event OxyTalk

Join us for our next oxygen community virtual coffee hour! Please feel free to send any questions ahead of time to oxygen360@copdfoundation.org, or just stop by to enjoy some time together! Click the following link to register: https://copdf.co/oxy-talk

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.