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5
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Going to events
Emphysematous changes and early background COPD on my CT. Lung function testing in a couple of weeks. I am doing everything I can to slow progression - daily exercise, good eating, vaccinations etc I play 8 ball pool and attend our National event …
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3
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Spirometry tomorrow petrified
I’ve woken this morning petrified of my spirometry tomorrow,I have severe anxiety too. I’m 57 years old, diagnosed mild copd in 2019 and nothing much has changed . I felt a few nights off feeling like I was suffocating so the dr has opted for the tests. …
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4
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Horrible pulmonary function results
Hello, I am new to this site. I just had pulmonary function test done. The results look horrible to me. FVC 66% PREDICTED, PEF 67%, FEF 32% FEV1 48%, FEV6, 66% LVM, TLC 69% PREDICTED, VC61%, FRC 63% RV 85% DLCO-c, 46% PREDICTED, VA 75%, KCO-c, 60% Never …
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19
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It’s me again. Update from my PCP. So discouraging.
Since you found a pulmonologist who was able to fit you in to his/her schedule, if you like the MD, ask if the MD if they have a GP they can refer you to. That’s how I go my awesome GP, a referral from my pulmonologist!
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6
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Dry lips and nose
I have used Petroleum jelly for many yrs. I used to have sever eczema. I use it only for my skin. I do not put it in my nose.
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7
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I guess this is a good thing?!?
I feel great, work out, stopped drinking can’t stand hang overs anymore, I have 2 Questions for you all. 1. My throat is RAW the more I work out, the days that I’m active my Phelgm is crazy insane, hoarseness, and scratchy. My Ent’s 2 of them say my …
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5
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Low dose of prednisone for maintenance?
3 years ago this month I was prescribed low dose short term prednisone after a trip to the ER for difficulty breathing. I felt great right away. After several weeks I had to do another short burst and again after a few more weeks. In all it took about 3 …
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4
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Spirometry Results 31M
Due to wheezing, coughing, fatigue and related breathing issues I had a spirometry test and CT scan done in 2021. I was 31 with a history of asthma/GERD but otherwise active and healthy with no history of smoking. The tests came back as follows: Pre …
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What questions do you have about financial wellness when living with chronic illness?
What would you like to know when it comes to financial planning? Finances are a large part of our lives. Planning and structuring our finances can be difficult when living with chronic illness. This May and June, we are partnering with financial fitness …
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9
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Help with pft
If after speaking with your pulmonologist and you still are unsatisified with their responses I would suggest that you consider a second opinion from a pulmologist . Truth is that there are other things that can cause the symptoms you describe. As for …
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6
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Flare up frequency.
Flare up frequency I used to have flare ups about six times per year and coughing up mucus everyday. Now I haven’t had a flare up since last October which is over 6 months now, plus I very rarely cough up any mucus. Also don’t have the level of SOB as I …
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15
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Living with mild emphysema
Our ages and smoking history are similar. When I was diagnosed this year through PFT and CT scan at 68 years old I was given a mild/moderate diagnoses as well as you even though my PFT FV1 numbers are not nearly as good as yours. FORTUNATELY my DLCO is …
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4
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Quitting smoking
since I have quit smoking, I have a lot of congestion, coughing mucus. I understand that this can last for a while. Does anyone have experience in this area? I would love to hear some encouragement thank you.
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3
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Traveling to higher elevations in RV with COPD
Hi, been a while since I have asked any questions but in the meantime I have been doing a lot of reading. The wife and I have been planning on an RV trip, since December, out west taking our Granddaughter who is 14.She is excited about going and I don’t …
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4
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SOB-Any ideas people, I’m new to this forum
My elderly mum has COPD and the last 4 months has been on a constant merry go round of steroids. Her stats are now above 90 but still exhausted by SOB and I can’t get her to find the energy to leave the house. Any ideas people, I’m new to this forum
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1
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Symbicort Dosage-Diagged with COPD around 14 yrs ago and given the usual Spiriva/Symbicort meds.
Diagged with COPD around 14 yrs ago and given the usual Spiriva/Symbicort meds. When i learned that Symbicort is a Sterroid, I decided to limit my intake of that to ONE puff morning & evening.and have been doing perfectly well on that. Taking it easy I …
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7
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COPD and Blood Pressure?
I am SO confused.... For the bulk of my life, my blood pressure has been utterly steady and boring. 120/80, no matter what else was happening with my body. In January, when I began seeing this new FP doctor, my resting blood pressure was …
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5
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Asthma/COPD overlap at 31
Hi everyone, My name is Nick - I'm currently in the process of getting a diagnosis (which I am very confident will be COPD). I have that discussion coming up here on Monday with my pulmonologist. I've fallen into a pretty debilitating depression since …
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7
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Just Breathe: Finding Your Breath During Stressful Times
How many times have you been told to “take a deep breath” or “just breathe” when you’re stressed? While these people mean well, they often don’t understand just how hard it is to take that deep breath, especially when you are living with COPD and other …
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4
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Emphysema, and near perfect PFT
I am a petite 68 year old woman. About ten years ago in the ER I was told I had Emphysema via a chest x-ray and a diagnosis of hyper inflated lungs. I made an appt. with a pulmonologist, had 3 or 4 PFT within the span of two years, all were normal, CT …
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3
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New Spirometry Results/ Questions
Hello Everyone, I waited over a year to get another PFT. During this time I learned a lot from reading the educational information on this website and monitoring the questions and answers. I also, learned a few thing when I showed up for my test: 1. I …
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4
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Has anyone tried Breztri vs Spiriva
Has anyone tried the Brestri, what do you think of it. Dr perscribed this one to replaced my Spiriva and symbicort?
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2
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Typical improvements in FEV1 on inhaler
Hi everyone, I am curious how much does FEV1 typically improve after treatment on the appropriate inhaler? I found that LABA/LAMA inhalers were only having a small effect. Since starting Trelegy my FEV1/FVC has quickly increased from 70% to 75% (a …
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6
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New guy intro
Welcome Randolph. As the others have said-- take the rescue inhaler with you. If you don't have one -call the doc and get one. I've been using Trelegy for 6 years. I hike a lot in the hills near my home. Often I take a puff of the rescue inhaler before …
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5
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Questions to ask Pulmonologist
Hi everyone, I see my pulmonologist today for the first time after my CT scan has shown ‘early emphysematous changes’ and ‘early background COPD changes’. Just wondering if you have any suggestions on things I should ask him? I’m keen to hear his …
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