COPD360social welcomes new member LMaze who joins 59,320 current members of our community. Weโ€™re glad you're here!

Anxious Sequoia

Anxious Sequoia asked the question: How much excercise/being active do I need

Hhello everyone I been wondering this but how much excercise should i be doing per day or what does staying active mean? I ride my stationary bike 45 mins a day dn walk my dog 2x day with resistance training every other day. Outside of that I'm mostly at …

37 minutes ago

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)Hey, everyone! I live in southwestern Michigan. We had an outbreak of severe thunderstorms in our area that spawned a few tornadoes, including one that traveled as close as about two miles from my house. Fortunately, our family is safe and we were one of the lucky ones that didn't have much property damage. However, there have now been 13 consecutive days with at least one reported tornado in the US, and a total of 437 confirmed tornadoes since the beginning of the year. More will be coming, as will other types of severe weather and emergencies.


There's no time like the present to review (or create) your household's disaster plan! You can use the COPD Foundation's Disaster Preparedness Plan (https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Downloads.aspx#DPP) to help you get started so that you are ready to go with your medications, equipment, and other necessities if disaster strikes. A little planning now can make a BIG difference later!

COPD Foundation Educational Materials

The COPD Foundation educational library has a variety of useful booklets, flyers, and tools that you can download to help you learn more about living and thriving with COPD โ€“ everything from the basics of lung conditions to specific topics such as exercise and exacerbations (flare-ups).

1 hour ago

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)answered the question As 36y male will I be able to see my 70s

Not much to add here, honestly. Life expectancy is incredibly hard to predict, no matter what you may read elsewhere on the internet. There is constant research into improving current therapies and developing new ones, so I'd recommend taking each day as …
Phyliss DiLorenzo NJ State Captainbrydy also answered the question Phyliss DiLorenzo NJ State Captainand 1 other also answered the question

1 hour ago

Tara Shedor, COPDF Communications

Tara Shedor, COPDF CommunicationsTODAY! BronchandNTM360social Coffee Break & OxyTalk Social Hour. Will you be there?

BronchandNTM360social Coffee Break - Wednesday, May 8 at 3 p.m. Eastern Time. A group for those in the bronchiectasis and NTM lung disease communities. 
Click the link to register for BronchandNTM360social Coffee Break here: https://copdf.co/Bronch-NTM-support

OxyTalk Social Hour - Wednesday, May 8 at 4 p.m. Eastern Time. A group for those on oxygen therapy. Send any questions ahead of time to oxygen360@copdfoundation.org. 
Click the link to register for OxyTalk Social Hour here: https://copdf.co/oxy-talk

3 hours ago

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)answered the question Lung Denervation

Welcome, Jeannette Sue! I'm afraid I have to be the bearer of some bad news: Targeted lung denervation (TLD) is still considered an experimental therapy. The study that could lead to FDA approval stopped recruiting subjects last fall; people who …
brydyKaren Deitemeyer - Florida State Captain also answered the question brydyand 1 other also answered the question

3 hours ago

Anxious Sequoia

Anxious Sequoia asked the question: As 36y male will I be able to see my 70s

Sitting here worrying about life expectancy, wondering if I'm gonna reach elderly age. seeing a pulmonologist on Monday worried about prognosis. If I have mild copd(praying I don't but going by symptoms I most likely have it) how long do I have to live? …

3 hours ago

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)

Mike Hess, RRT (COPDF Senior Director of Public Outreach and Education)answered the question How bad are typical early COPD symptoms? (and struggling to cope)

I think yours is definitely an unusual case. As has been touched on previously, there does seem to be an asthma or asthma-like component to your breathing problems rather than just "plain" COPD, especially given that increasing DLCO/TLCO. You may indeed …
Brittishere also answered the question Brittishere also answered the question

3 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ—SIMPLE, BUT SPECIAL SALAD๐Ÿฅ—1/2 cup packed fresh basil leaves1/4 cup olive oil3 tbsp. red wine vinegar 1 tbsp. finely chopped shallot2 tsp. Dijon mustard 1 tsp. honey1/4 tsp. salt1/4 tsp. freshly ground black pepper 10 cups mixed salad greens...

6 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainAnother Wednesday! Another day to wake up smiling! May your smile be uplifting and everlasting!
Enjoy your day...

10 hours ago

Kailuabreathing

Kailuabreathing answered the question How do you manage the anxiety?

I've been prescribed Alprazolam (Xanax) it helps a lot especially when I'm sick
1fatfannyTmM0930Jean IA State Captainand 6 others also answered the question 1fatfannyand 8 others also answered the question

14 hours ago

Kailuabreathing

Kailuabreathing answered the question Has anyone tried Breztri vs Spiriva

Yes just started using it and I think it's working well so far but I have to deal with my insurance about the cost
SusiereaderJean IA State CaptainBill Clark - Community Manager also answered the question Susiereaderand 2 others also answered the question

14 hours ago

Jeanette Sue

Jeanette Sueasked the question: Lung Denervation

Hi Everyone, Has anyone had lung denervation for COPD. If so, has it helped. Any info will be appreciated. Thanks!

17 hours ago

David29

David29asked the question: How bad are typical early COPD symptoms? (and struggling to cope)

Hi everyone, I'm wondering from your experiences what are the symptoms of early COPD like? I'm 28M and have been dealing with some non-reversible obstruction for about 10 months now. My FEV1/FVC is at 70% without reversibility - most recent …

18 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainIt's a great day to prepare and enjoy a salad! This is a grain salad, which will be ready to eat at supper time! ๐Ÿฅ„

23 hours ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captainanswered the question Check-in: What steps do you take to avoid outdoor asthma and COPD triggers?

Welcome, spiritflame! So happy to have you here with us!
Tara Shedor, COPDF CommunicationsCaroline West Virginia State Captain also answered the question Tara Shedor, COPDF Communicationsand 1 other also answered the question

1 day ago

spiritflame

spiritflame

Hi, I am new to this. I have had COPD for a few years maybe longer but wasnโ€™t really diagnosed earlier. I recently had a three months  in the hospital and rehab experiencing not being able to get rid of CO2. It was a near death experience. After the hospital, I had to go to rehab because I was unable to walk after being in the hospital bed for five weeks. So afraid of having high CO2 again and having to go through that all over again. I donโ€™t understand why they have difficulty giving you information about your symptoms and prognosis, etc. because they donโ€™t seem to tell you anything Iโ€™m learning as I experience it. I have a severe case my lung capacity is low

1 day ago

Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)

Kristen Szymonik, BS, RRT, AE-C (Assistant Director of Education)asked the question: Check-in: What steps do you take to avoid outdoor asthma and COPD triggers?

Today is World Asthma Day! Did you know that COPD and asthma have some of the same triggers? In the past, I shared some information about indoor allergens and COPD/asthma triggers . Now, letโ€™s dive in a bit deeper and learn more about outdoor allergens …

1 day ago

baileymccrary

baileymccraryHello all! I want to highlight our fantastic Captain Caroline West Virginia State Captainโ€‹, who continues to spread positivity to members of the lung health community. Caroline recently wrote a column in COPD News Today sharing how she spreads sunshine to friends, family, and strangers, and how she finds peace and feels rewarded by making sure others know they are loved and by strengthening her sense of community through her time spent on COPD360Social. Caroline, thank you for your relentlessly positive attitude, and we are so lucky to have you on our team and to get to work with you! 


You can read Caroline's column here: https://copdnewstoday.com/columns/spreading-sunshine-others-how-i-stay-positive-copd/?utm_source=COPD&utm_campaign=9e895bc97f-Email_ENL_US_COPD&utm_medium=email&utm_term=0_23d08524e9-9e895bc97f-75539629

Spreading sunshine to others is how I stay positive with COPD

When columnist Caroline Gainer is struggling to stay positive, she turns her attention to others, offering them kindness and support.

1 day ago

brydy

brydyanswered the question Spirometry tomorrow petrified

Thinking of you today Grandma 🙏x
Grandma05RedPowerDebbieB.-Connecticut State Captainand 1 other also answered the question Grandma05and 3 others also answered the question

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ‘DELUXE AVOCADO TOAST๐Ÿฅ‘4 slices multigrain bread, toasted1/2 cup soft herb flavored cream cheese1 cup arugula2 avocados, peeled, pitted, and sliced 1/3 cup dried cranberries 1/3 cup pepitas 2 tbsp. sesame seedsSalt and freshly ground black...

1 day ago

Anxious Sequoia

Anxious Sequoia

2 more days till I get to see my pulmonologist. Very scared at the moment haven't slept in 2 days. I'm afraid they will say I have a terrible prognosis. I'm only 36. If you all can may I have a lil support

1 day ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State CaptainYou are strong. You are able. Pass that strength along to all who follow...
Have a terrific Tuesday, and thank you for being YOU! ๐Ÿ˜€

1 day ago

EvanofEarth

EvanofEarthHappy Motivational Monday.

1 day ago

Kandy State Captain of South Dakota

Kandy State Captain of South Dakota Happy Nurses Week May 6th to the 12th.  Nurses are the backbone of the medical field.  Nurses are indispensable.  Thank a nurse for all there help.  

2 days ago

lizjb

lizjbanswered the question What kind of medicine do they have for nebulizer my doctor want me on trilogy I cant afford it

not an answer, not a place for comment so? Arent nebulizer meds covered under Medicare part B instead of your part D?
DanK HIcopd - Hawaii State CaptainCaroline West Virginia State Captainand 1 other also answered the question DanK and 3 others also answered the question

2 days ago

Jingles

Jinglesanswered the question Horrible pulmonary function results

Hi. I am 70. Yes I did have the test done. It was negative. Also I was treated with Vfend, blood test and sputum showed possible fungus infection. That cleared up. Recent blood test and sputum sample showed Serraita marcescens The doctor at Temple did …
TonicDkKandy State Captain of South Dakota David Mannino, MD (Chief Medical Officer, COPD Foundation ) also answered the question TonicDkand 2 others also answered the question

2 days ago

Jonnie Korinko (COPDF Manager of Public and Professional Education)

Jonnie Korinko (COPDF Manager of Public and Professional Education)answered the question Going to events

While I echo what has been mentioned above, I also want to mention that you can actively take steps to try to prevent getting sick. Make sure that you're up-to-date on vaccinations (Pneumococcal, influenza, pertussis, shingles, etc.), have some travel …
brydyRedPower also answered the question brydyand 1 other also answered the question

2 days ago

Kap

Kap

Ha. Better than yesterday!!

2 days ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captaincommented onEating Well: From Debbie Bโ€™s Kitchen to Yours

๐Ÿฅ„GRANOLA๐Ÿฅ„ "Wake up your taste buds!"2 cups whole rolled oats1/2 cup chopped walnuts1/2 cup unsweetened coconut flakes2 tsp. cinnamon 1/2 tsp. salt2 tbsp. canola oil1/4 cup pure maple syrup 2 tbsp. almond butter 1/3...

2 days ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.