Organizations & Resources

Oganizations and Resources

Organizations & Resources

The following is a compilation of external links to organizations and resources where you may be able to find additional information.

The following is a compilation of external links to organizations and resources where you may be able to find additional information.

The following is a compilation of external links to organizations and resources where you may be able to find additional information. Please note that these are listed for informational purposes only. Please consult with a physician before making any changes to your prescribed regimen.

Second Wind Lung Transplant Association, Inc.: Information and support for transplantation.

Alpha-1 Association: A not-for-profit organization that offers support, education and advocacy for individuals with Alpha-1 Antitrypsin Deficiency.

Alpha-1 Foundation: A not-for-profit organization with several programs that spread awareness and education for individuals with COPD, including Alpha-1 Clinical Resource Centers (CRC), the Alpha-1 Research Registry, other research programs and information on Alpha-1.

American Hospice Organization: Offers resources on hospice and palliative care.

American Legacy Foundation: This organization has programs working to engage all Americans in the dialogue about tobacco and to foster an understanding about its harmful effects.

Administration on Aging: Home and community-based care for older persons and their caregivers. Supportive services provide handyman, chore, and personal care services.

American Association for Respiratory Care (AARC) : AARC encourages and promotes professional excellence, advance the science and practice of respiratory care, and serve as an advocate for patients, their families, the public, the profession and the respiratory therapist.

Mesothelioma Cancer Alliance: Information on the symptoms, causes and treatment options for families fighting mesothelioma. They also offer a $4,000 scholarship for college students who have been affected by any type of cancer in their life.

Mesothelioma & Asbestos Cancer Resource Center: Informational resource for diseases and cancers drawn from asbestos.

Today’s Caregiver Magazine: Provider of information, support and guidance for family and professional caregivers.

Family Caregiver Alliance: Offers caregiving information, advice, and discussion groups.

CenterWatch: Clinical Trials Listing Service, PDR Family Guides Drug Information, information on prescription and over the counter (OTC) drugs as well as herbal treatments and supplements.

American College of Chest Physicians Chest Journal: Prevention, treatment, education, research and communication about chest diseases.

COPD-Alert Support and Advocacy Group: Frontline Advice for COPD Patients, information on COPD and the NHLBI Learn More Breathe Better COPD Awareness Campaign.

COPD-International: COPD chat rooms, information, library for medical information, and support for caregivers.

The Eldercare Locator: The Eldercare Locator is the first step to finding resources for older adults in any U.S. community.

Emphysema Foundation for Our Right to Survive: Information and support for people with emphysema and COPD.

American Academy of Family Physicians: Health and drug information. Also contains a feature where you can find a doctor by entering your zip code.

The Global Initiative for Chronic Obstructive Lung Disease: Works with healthcare professionals and public health officials around the world to raise COPD awareness and to improve prevention and treatment of this lung disease. Through the development of evidence-based guidelines for COPD management, and events such as the annual celebration of World COPD Day.

GriefNet: Support and resources for people dealing with grief, death and major loss.

American Lung Association: Here you can find a local ALA chapter, flu clinic locator, help with treatment decisions for COPD, and definitions for lung diseases. La información también esta disponible en Español.

MedlinePlus: A service of the U.S. National Library of Medicine and the National Institutes of Health. Contains medical encyclopedia, dictionary, and information to help answer health questions. La información también esta disponible en Español.

Medscape Today: Resource center for all diseases, definitions and latest medical news.

National Jewish Health: Site for LUNG LINE 1-800-222-LUNG (5864). Specializes in the treatment of patients with respiratory, immune and other related diseases, and for groundbreaking medical research. Founded in 1899 as a nonsectarian, nonprofit hospital, National Jewish remains the only facility in the world dedicated exclusively to these disorders.

Mesothelioma Symptoms: This website has pulled together as a single resource everything related to asbestos to promote education and awareness for victims, their families, and the general public.

National Family Caregivers Association: Educates, supports, empowers and speaks up for caregivers. Also offers caregiving resources.

National Heart, Lung, and Blood Institute: Information and research related to the causes, prevention, diagnosis, and treatment of heart, blood vessel, lung and blood diseases, and sleep disorders for patients, the public, health professionals, and researchers.

National Institutes of Health: A division of the U.S. Department of Health and Human Services. The NIH is the primary federal agency for conducting and supporting medical research, helping to lead the way toward important medical discoveries that improve people’s health and save lives. NIH scientists investigate ways to prevent disease as well as the causes, treatments and even cures for common and rare diseases.

National Lung Health Education Program: Contains several resources for patients and health care professionals on COPD.

Physicians Desktop Reference: This database provides comprehensive consumer-friendly information on prescription and over the counter (OTC) drugs available through pharmacies.

Pulmonary Education & Research Foundation: Education, research and information on COPD.

Portable Oxygen: A User’s Perspective: Created by Dr. Peter Wilson, this website contains descriptions of all types of portable oxygen systems, traveling with oxygen, safety, as well as a Q&A section.

Partnership for Prescription Assistance: Helps patients without prescription coverage to get medicines they need through private or public programs.

American Thoracic Society: Patient and healthcare professional education on COPD.

ATS/ERS Standards for the Diagnosis and Management of Patients with COPD: ATS/ERS Standards for the Diagnosis and Management of Patients with COPD

Visiting Angels: Network of non-medical, private duty home care agencies providing senior care, elder care, personal care, respite care and companion care to help the elderly and adults continue to live in their homes across America.

Well Spouse Association: Support for spousal caregivers, support groups, and newsletters.

Partnership for Prescription Assistance: Helps patients without prescription coverage to get medicines they need through private or public programs.

Your Lung Health: Information from a variety of sources, including respiratory therapist experts from the American Association for Respiratory Care (AARC), to help you minimize problems of living with lung disease, maximize your health and energy, and prevent future lung conditions.

European Respiratory Society: ERS is the leading professional organisation in its field in Europe. It is broad-based, with some 10,000 members and counting in over 100 countries. Its scope covers both basic science and clinical medicine.

A Place for Mom: Give help to seniors and families to make informed decisions, save time, and feel less alone as you search for senior care and senior housing.

NTM Info & Research: A not-for-profit working to save and improve lives through research, education, early detection, and improved treatments for people with pulmonary nontuberculous mycobacterial (NTM) disease.

The Sitting Disease Prevention Guide: 50 to 70 percent of people spend six or more hours sitting every day. Recent research shows this can affect your health and even be deadly. The health concerns of a sedentary lifestyle have been coined “Sitting Disease”. Our Premier Sitting Disease Prevention Guide will help you learn about this dangerous lifestyle, find out if you are at risk, and uncover ways to prevent its devastating effects.

touchRESPIRATORY.com is an independent information resource supporting physicians, clinicians and leading industry professionals in continuously developing their knowledge, effectiveness and productivity, via open-access content in multimedia formats.

US Respiratory & Pulmonary Diseases is a peer-reviewed, open access, bi-annual journal comprising review articles, case reports, practice guides, theoretical discussions, and original research. It features balanced and comprehensive articles written by leading authorities, addressing the most important and salient developments within the respiratory and pulmonology fields.

Medicare Rights Center: The Medicare Rights Center is a national, nonprofit consumer service organization that works to ensure access to affordable health care for older adults and people with disabilities through counseling and advocacy, educational programs and public policy initiatives.

Pack Health: Pack Health provides real help for those living with COPD. Pack Health members are matched with personal health advisors, who provide structured support needed to better manage your condition, navigate the healthcare system, and let you live a healthier life.

Sleeptember: Sleeptember is a community of people with chronic health conditions, non-profit organizations, and other partners working together to raise awareness of how sleep impacts our health, safety, well-being, and productivity.

Dynamic Air Quality Solutions: Dynamic Air Quality Solutions offers Indoor Air Quality (IAQ) products that solve a variety of IAQ problems that are common in homes today.


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