0 Votes
2 Answers
April Showers Bring More Than May Flowers: Self-Care Spring

Happy Spring! While I love the changing of the seasons, and I especially love spring, sometimes it brings more than just sunshine and flowers. It seems like this time of year brings a lot of opportunities to be stressed. When I was younger, I might have …

0 Votes
3 Answers
Anyone else newly diagnosed

Hi Caroline, There’s a lot you can do to improve your outcome e.g. diet / exercise / smoking cessation… If you post the numbers from your spirometry here, there are world class clinicians who monitor the site and may give you the benefit of their …

Author: Caroline s
0 Votes
2 Answers
Mucinex/Guaifenesin and NAC

I have been reading a lot about the use of Mucinex/Guaifenesin and NAC being used to help reduce mucus. Can these 2 be used together or is it one or the other? In all the comments I have not seen where anyone was using both at the same time.

Author: LannyV
0 Votes
11 Answers
How do you manage the anxiety?

Hi, Just my experience. My symptoms increased massively straight after diagnosis (mild COPD), which when I think back now was probably anxiety, they did (thankfully) settle back down… My experience is that positive action is the only antidote or tonic …

Author: RedPower
0 Votes
7 Answers
No results yet

Had my spirometry Tuesday still waiting results. I was also fitted yesterday with a 24 hour heart monitor the drs are covering all basis. Also had chest x ray. The nurse doing my test was absolutely lovely and so reassuring. Will update when results are …

Author: Grandma05
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0 Votes
5 Answers
How bad are typical early COPD symptoms? (and struggling to cope)

Hi everyone, I'm wondering from your experiences what are the symptoms of early COPD like? I'm 28M and have been dealing with some non-reversible obstruction for about 10 months now. My FEV1/FVC is at 70% without reversibility - most recent …

Author: David29
0 Votes
7 Answers
Any experience with a trilogy vent?

Patient has pulmonary fibrosis, on 6-8 liters of oxygen at home. Doctor wants sats 86-91 but they’re staying in low 80s. Patient only has use of her upper lobes. Her carbon dioxide levels are extremely high (119 when we brought her into the hospital a …

Author: Natalie14
0 Votes
4 Answers
Quitting smoking-I would love to hear some encouragement thank you.

since I have quit smoking, I have a lot of congestion, coughing mucus. I understand that this can last for a while. Does anyone have experience in this area? I would love to hear some encouragement thank you.

Author: Meow lover
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0 Votes
4 Answers
Lung Denervation

Hi Everyone, Has anyone had lung denervation for COPD. If so, has it helped. Any info will be appreciated. Thanks!

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0 Votes
3 Answers
How much excercise/being active do I need

Hhello everyone I been wondering this but how much excercise should i be doing per day or what does staying active mean? I ride my stationary bike 45 mins a day dn walk my dog 2x day with resistance training every other day. Outside of that I'm mostly at …

0 Votes
3 Answers
As 36y male will I be able to see my 70s

Sitting here worrying about life expectancy, wondering if I'm gonna reach elderly age. seeing a pulmonologist on Monday worried about prognosis. If I have mild copd(praying I don't but going by symptoms I most likely have it) how long do I have to live? …

0 Votes
8 Answers
Has anyone tried apple cider vinegar?

I use Mothers Vinegar to gargle. It seems to help even better that regular cider vinegar.  You can find it in most grocery stores with any problem.

Author: dustybill
0 Votes
5 Answers
Has anyone tried Breztri vs Spiriva

Has anyone tried the Brestri, what do you think of it. Dr perscribed this one to replaced my Spiriva and symbicort?

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4 Answers
Check-in: What steps do you take to avoid outdoor asthma and COPD triggers?

Today is World Asthma Day! Did you know that COPD and asthma have some of the same triggers? In the past, I shared some information about indoor allergens and COPD/asthma triggers . Now, let’s dive in a bit deeper and learn more about outdoor allergens …

0 Votes
12 Answers
Spirometry tomorrow petrified

I’ve woken this morning petrified of my spirometry tomorrow,I have severe anxiety too. I’m 57 years old, diagnosed mild copd in 2019 and nothing much has changed . I felt a few nights off feeling like I was suffocating so the dr has opted for the tests. …

Author: Grandma05
0 Votes
5 Answers
Going to events

Emphysematous changes and early background COPD on my CT. Lung function testing in a couple of weeks. I am doing everything I can to slow progression - daily exercise, good eating, vaccinations etc I play 8 ball pool and attend our National event …

Author: RedPower
0 Votes
5 Answers
Horrible pulmonary function results

Hello, I am new to this site. I just had pulmonary function test done. The results look horrible to me. FVC 66% PREDICTED, PEF 67%, FEF 32% FEV1 48%, FEV6, 66% LVM, TLC 69% PREDICTED, VC61%, FRC 63% RV 85% DLCO-c, 46% PREDICTED, VA 75%, KCO-c, 60% Never …

Author: Jingles
0 Votes
6 Answers
What kind of medicine do they have for nebulizer my doctor want me on trilogy I cant afford it

neburlizer

Author: Kay cee
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0 Votes
19 Answers
It’s me again. Update from my PCP. So discouraging.

Since you found a pulmonologist who was able to fit you in to his/her schedule, if you like the MD, ask if the MD if they have a GP they can refer you to. That’s how I go my awesome GP, a referral from my pulmonologist!

Author: jarr2329
0 Votes
6 Answers
Dry lips and nose

I have used Petroleum jelly for many yrs. I used to have sever eczema. I use it only for my skin. I do not put it in my nose.

Author: Dorisa
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0 Votes
7 Answers
I guess this is a good thing?!?

I feel great, work out, stopped drinking can’t stand hang overs anymore, I have 2 Questions for you all. 1. My throat is RAW the more I work out, the days that I’m active my Phelgm is crazy insane, hoarseness, and scratchy. My Ent’s 2 of them say my …

Author: mcat43
0 Votes
5 Answers
Low dose of prednisone for maintenance?

3 years ago this month I was prescribed low dose short term prednisone after a trip to the ER for difficulty breathing. I felt great right away. After several weeks I had to do another short burst and again after a few more weeks. In all it took about 3 …

Author: gcd1477
0 Votes
4 Answers
Spirometry Results 31M

Due to wheezing, coughing, fatigue and related breathing issues I had a spirometry test and CT scan done in 2021. I was 31 with a history of asthma/GERD but otherwise active and healthy with no history of smoking. The tests came back as follows: Pre …

Author: colorado3
0 Votes
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What questions do you have about financial wellness when living with chronic illness?

What would you like to know when it comes to financial planning? Finances are a large part of our lives. Planning and structuring our finances can be difficult when living with chronic illness. This May and June, we are partnering with financial fitness …

0 Votes
9 Answers
Help with pft

If after speaking with your pulmonologist and you still are unsatisified with their responses I would suggest that you consider a second opinion from a pulmologist . Truth is that there are other things that can cause the symptoms you describe. As for …

Author: Julia33
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    Medical Advice

    It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.