Jane, 66, a former smoker with chronic obstructive pulmonary disease (COPD), was prescribed supplemental oxygen. Jane was scared and had many questions: How do I use it correctly? How long will I need it? How will my family and friends react? Will I become addicted? Use of O2 was one of the most important health decisions she had ever faced.
About 1 million people with severe lung disease, most commonly COPD, are treated with oxygen in the US. Appropriate oxygen use can save lives and increase quality of life, yet adherence to therapy is poor. In focus groups, patients with COPD and their caregivers emphasized the need for reliable information and coaching on oxygen, such as availability and appropriate use of oxygen delivery systems and social aspects of oxygen use. They expressed a strong interest in getting help and education.
Researchers from the University of Illinois at Chicago, National Jewish Health, and LA-BioMed have developed a broad-based collaboration with the COPD Foundation, AlphaNet, patients, caregivers, advocacy groups, professional organizations, a national oxygen supplier, and others to conduct the PELICAN study in adults with COPD who have a prescription for oxygen 24hrs/day, 7 days/week.
The goal of PELICAN is to improve the health and wellbeing of people with COPD and their caregivers. The PELICAN study is tailored to meet the needs of patients with COPD. Participants will receive patient-friendly educational material, developed by the COPD Foundation, and receive phone calls over a three month period.
PELICAN launched on April 9, 2015 and is now open to COPD patients nationwide.
To date, COPD patients from 36 states across the nation have taken part in PELICAN. We look forward to extending our reach by supporting COPD patients from all 50 states in 2016!
From your home, call toll-free a PELICAN study staff member at: (844) 627-5587
Hours: 7:30 AM - 6:30 PM (Central time, Monday to Friday)