The PELICAN Study

PEer-Led o2 Info-line for patients and CAregivers (PELICAN)

The PELICAN study tests whether an O2 infoline for patients and caregivers will increase supplemental oxygen adherence and improve health in people with COPD.


The problem

There are 3 interventions that save lives in people with COPD...

  1. Supplemental oxygen for resting hypoxemia
  2. Intensive smoking cessation interventions
  3. Non-invasive ventilation for COPD exacerbations
    Source: GOLD guidelines 2016

…but adherence to supplemental oxygen can be low.

  • “I’m embarrassed to use my oxygen tank.”
  • “I don’t think it works—I still get short of breath.”
  • “The doctor sends you home on O2, you don’t know you’ll be on it the rest of your life.”

Study design

PELICAN is testing a care model that combines written self-management education materials and peer coaching phone sessions from the COPD InfoLine. Over 500 adult patients with a diagnosis of COPD and a prescription for home oxygen were randomized to one of three self-management groups--Proactive PELICAN, Reactive PELICAN, or usual care.

PELICAN Study Deisgn

Participant snapshot

PELICAN enrolled over 500 participants with a diagnosis of COPD and a prescription for home oxygen.

PELICAN Participant Map

  • Over half of participants were more than 60 years old. Over 80% had used supplemental oxygen for at least 12 months.
  • Nearly all patients used a stationary oxygen concentrator plus at least one other piece of oxygen equipment to use outside the home. Oxygen tanks and portable oxygen concentrators were the two most common pieces of oxygen equipment.
  • About half of the participants had been hospitalized in the past 12 months.

Coming soon: findings
Results are expected to be available in the first half of 2017.

The PELICAN team is hard at work analyzing information collected during the study.

Staff + partners

COPD Foundation InfoLine associates + leadershipplus

  • Karen Anzalone
  • Pam DeNardo
  • Tim Deuby
  • Ken Ellis
  • Shelia Favazza
  • Marilyn Hyatt
  • Shirley Lawson
  • Linda Mullin
  • Sal Puccio
  • Dugan Reed
  • Jamie Sullivan
  • John Walsh
  • Linda Walsh

University of Illinois at Chicago study staffplus

  • Jennifer Buenrostro
  • Nina Bracken
  • Crystal Cannon
  • Jan Cotton
  • Jessica Dudley
  • Alexander Frye
  • Vanessa Gonzalez
  • Maciej Grabarek
  • Sai Dheeraj Illendula
  • Jerry Krishnan
  • John Linnell
  • Kyle Maggio
  • Lourdes Norwick

External advising committeeplus

  • Joel J. Africk Respiratory Health Association
  • Rino Aldrighetti Pulmonary Hypertension Association
  • Linda Arnold Patient
  • Teresa Barnes Coalition for Pulmonary Fibrosis
  • Helen Nichols Patient
  • Thomas Kallstrom American Association for Respiratory Care
  • Joseph Lewarski Drive Medical-DeVilbiss Healthcare
  • Joseph Morrison Caregiver
  • Jim Nelson Patient

Medical + scientific teamplus

  • Richard Casaburi LA BioMed Research Institute / Harbor UCLA Medical Center
  • Scott Cerretta COPD Foundation
  • Kristen Holm National Jewish Health
  • Jerry Krishnan University of Illinois at Chicago
  • Janos Porszasz LA BioMed Research Institute / Harbor UCLA Medical Center
  • Valentin Prieto-Centurion University of Illinois at Chicago
  • Robert Sandhaus AlphaNet
  • Jamie Sullivan COPD Foundation

Partnersplus

PELICAN Partners

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