Meet Your State Advocacy Captains!

State Captains are volunteers with COPD, caregivers, friends and family members or healthcare providers who use their contacts and talents and partner with the COPD Foundation to serve as state and community leaders.

Captains promote the importance of becoming a part of the COPD community. They work to spread COPD awareness in their state and local areas, mentor fellow COPD community members, and participate in online and in-person grassroots advocacy and community building activities focused on health policy issues that are important to those who have COPD. To learn more about becoming a state captain in your area please email statecaptains@copdfoundation.org.


Diane Cameron

Diane Cameron Profile Photo Webster, New York
newyork@copdfoundation.org

As State Captain I hope to encourage airlines to streamline the forms necessary to fly with oxygen. Every airline has had a different required form to fly. Southwest has just made this requirement unnecessary. Others need to follow so people with COPD can travel. We also need to make the state laws more uniform fro being able to have infusions. They are all different.

My proudest COPD moment was receiving the Dennis Pollack Award for advocacy at the local, state, and national levels in June 2013 at the National Alpha-1 Conference.

Some of my advocacy work includes, being an Alpha-1 Support Group Leader for five years, I train pharmaceutical reps, participate in ride alongs to pulmonologist offices, attended 8 Alpha-1 National Conferences, obtained a New York Alpha-1 Proclamation, advocated in Washington, DC for respiratory therapists, attended Alpha-1 Education Days, spoken at respiratory conferences, spoken at respiratory conferences, educated people about oxygen use, participated in the George Washington Bridge Walk for Alpha-1, Celtic Connection for Alpha-1, Federal level meeting about Alpha-1,k shared brother/sister Alpha-1 journey, teamed with the American Lung Association, and spoken to several Better Breather Groups and Pulmonary Health Fairs. I have been with State Representative Johns and State Senator Nizzolio along with Federal Drug Administration officials in Washington, DC.

My inspiration to share is “Life is not measured by the number of breaths you take but by the moments that take your breath away.”

 


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COPD Foundation State Captain Program Informational Video

The COPD Foundation is looking for new State Captains to join our community to be champions for promoting COPD awareness, improving quality of life for those with COPD, to participate in research opportunities, policy, and much more. Email statecaptains@copdfoundation.org for questions and to start the onboarding process today!