COPD360social welcomes new member pereira who joins 59,122 current members of our community. Weโ€™re glad you're here!

Gretchen McCreary

Gretchen McCreary

One week to go! The excitement is growing to hear from our community about what research priorities matter most to you! The voting will be open for 3 weeks in order to give you time to lend your voice to research and helping to shape the future of COPD research. 


The Help GUIDE COPD Research event begins next week, Monday, February 24, 2020. We look forward to seeing you there!

4 years ago

Lorrie State Captain of South Mississippi

Lorrie State Captain of South Mississippi

Mornin everbody hope ya'ens are havin a Wonderful day.  Well 5 days taday YAY.  IT'S GOIN TRULY VERY WELL.  Ima havin abit of full chestiness , just feelin like I can't take a deep breath,  ima startin ta wonder if my meds are not workin the way they used ta , ima on Spriva and Symbicort has anyone else had this happen after so many years on the same meds and had ta switch ? It just doesn't seem ta be workin the same anymore.  And that's concernin ta me . I go ta my Bestest Buddy and Pal my Pulmonologist on Thursday,  just wonderin if ya'ens experienced this . Well he's gonna be happy I kept my promise ta quit smokin by the time I seen him again. Ya'ens have a Wonderful Blessed Day my Friends 
Love Lorrie 

4 years ago

Anonymous

Anonymous

Prior to me going on new medications, my Doctor gives me alternatives other than just writing a prescription to get me out of the office. The conversations I've had with my Pharmacists I've worked with is, Doctors need to be re-educated on medications, for instance we will get scripts from the same physician and he or she will have everyone on the same prescription and strength? Or the worst is sending a patient in for a "prescription only" medication and telling them you can purchase it over the counter. Very frustrating!

4 years ago

Anonymous

Anonymous

DebbieB, I have to hand it to you, I loved the Birthday Song to Ed, especially the Eh-Ed, that made it very real! It really made me laugh and smile๐Ÿค˜

4 years ago

MM4

MM4

Anyone here tried Trelegy and not done well with it?  It has an extra component than bevespi that I was on and done very well with.  Sorry Bill66, I know it's not agreeing with you! 
I'm nervous about trying Trelegy since one of the meds is also in Advair that didn't agree with me at all when I tried it years ago. If it doesn't help, I'll go back to the bevespi but I won't know if it'll help until I try it!

4 years ago

  • NewestOldestClick to View All Comments7 comment(s)
  • Jean IA State CaptainMany people have done very well with Trelegy. It's got a LAMA, LABA and ICS all in one. Since you don't know which of the two ingredients in Advair you reacted badly to, you'll just have to try it to see if it works. The inhaled steroid is what's being added to what's already in the bevespi.

    Das23, don't be surprised if you doc is reluctant to take you off Trelegy. Reducing exacerbations is one of the things Trelegy is supposed to do. Remember it's a maintenance med and if you don't take it, you won't get the benefit. Perhaps it's the reason you haven't had an exacerbation in two years......4 years ago
  • das23You are right on again Jean. Doc says stay with Trelegy---If it ain't broke-Don't fix it----and I agree!!๐Ÿ‘4 years ago
  • MM4Yes, it is powder and my dr mentioned that as the possible trigger. But I'm not sure if that was THE trigger. And in my case, bevespi is working well, but there are times I struggle to stay where I should be due to triggers I can't control. My "bad" days have been harder to manage but I still have good days too.  We dont know if it's just natural progression of the disease or if it can be helped by the ICS.  Honestly, my gut is telling me it just is what it is and I'm about to cave and see about plunging into a POC purchase to have on hand as needed. But if trelegy does the trick instead, I can buy myself a little more time. ๐Ÿ˜‰ Part of me is thinking my lungs have been doing this for 46 years now and they're just tired of all that extra work. ๐Ÿ˜œ4 years ago
CyndiFab

CyndiFabanswered the question Assisted suicide for end stage COPD patients?

Hi Patrick, Just joined this group and saw your post. Thought I would give my 2 cents worth knowing you have already received tons of answers and advice. For me personally, i do not believe in suicide or having someone help end my life. It's a …
AnonymousdablakleyForgeti5and 12 others also answered the question Anonymousand 14 others also answered the question

4 years ago

Anonymous

Anonymous

The Bevespi Aerosphere is causing a different type of chest discomfort, I normally have chest tightness from the combination of emphysema and bronchitis between my shoulder blades, neck and middle of my back and of course my chest its constant but relatively mild. I'm not palpitating but my heart is sort of pounding, like albuterol pounding so I'm going to give it one more day and then I have a wellness check on Wednesday. Kind of crazy how things can go downhill so quickly. Keep on keepin on

4 years ago

2cents

2centsasked the question: My Zephyr Valve journey

Today I had 4 Zephyr valves inserted into my left lung. Since finding info on patients who have gone through it has been difficult for me, I decided to share what I can in hopes it might help someone else looking for info or trying to make a decision. …

4 years ago

Caroline West Virginia State Captain

Caroline West Virginia State Captain

I had my first meeting to day with my mental health therapist.  We had instant rapport, so I think this will be a good fit for me.

4 years ago

NowWhat

NowWhatasked the question: Congestive Heart Failure and COPD

How do I know if I am having a CHF flareup or a COPD flareup? How I react is different. Don' t want to overreact with Ventenlin or Nitro.

4 years ago

Forgeti5

Forgeti5

๐Ÿ˜„ Happy I have room to myself again. Hoping for a few days to get
Caught up on sleep. Roommate found a new home. Kaya ๐Ÿ’ƒ๐ŸŽถ

4 years ago

luckymilt488 COPD FOUNDATION Captain

luckymilt488 COPD FOUNDATION Captainasked the question: How do I find the pocket guide for COPD

I am looking for the pocket guide For COP

4 years ago

edpe77

edpe77

I'm at my daughter's ! Successfully signed in here, and got my e-mails up. Now it's nap time; and then birthday dinner with my grandsons....76 today.
ed

4 years ago

edpe77

edpe77

Off to my daughter's house for the week, and I'm anxious about being away from my comfort zone at home. My daughter's on a cruise, my son is painting our house.,.,. works out good, someone to keep an eye on my 18 year grandson, with only the note I can't stay in the paint fumes. That is I'm not watching him!!!
ed

4 years ago

Youngin

Younginasked the question: Young with stage 1

At my current age of 27 I was recently diagnosed with COPD. The diagnosis process has taken longer than necessary because my doctor has proven to be not to o helpful in the process. After advocating for and setting up my own PFTs testing my results have …

4 years ago

DebbieB.-Connecticut State Captain

DebbieB.-Connecticut State Captain

Kleeโ€‹. I have alot of trouble breathing on a windy day. I try to stay indoors as much as possible. I also have great difficulty with the perfume and baby powder that so many women wear. Those are my two biggest triggers. I have severe uncontrollable eosinophilic asthma, as well as COPD.  I wear an RZ mask whenever I go out in public. I understand what you mean about the perfume sitting in your lungs....it happens to me. Even my shopping bags smell like perfume when I bring them home. I wish people would not load up on fragrance. ๐Ÿ˜ช 
I wish you well, and I hope you have an easy breathing day today! ๐Ÿ˜Š
DebbieB. 

4 years ago

Panic81

Panic81

I'm up late,  having a panic attack. I was recently diagnosed with moderate to severe COPD and i have a 4 and 5 year old. Im so terrified i wont get to raise them.

4 years ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Panic81Thank you MM4, I have a pulmonary referral and will have an appointment soon.  I am very green about this disease and the more I Google,  the more i need a xanax! Lol 4 years ago
  • Panic81Hi Jean.  I've had panic attacks since i was a child.  I'm skilled at hiding them. I also have learned skills to manage them but my diagnosis threw me. I am working on getting professional help because it's too difficult to manage it right now. How are you?4 years ago
  • Lorrie State Captain of South Mississippi Panic81 
    Please the bestest thing ya'ens can do for ya'ens self is stay off GOGGLE it is what I call the Deep Dark Rabbit Hole and it will take control of ya'ens life not in a good way , and makes ya'ens lose so much time that ya'ens could be spendin with ya'ens family and friends.  Everthin ya'ens need ta know is right here at ya'ens fingertips.  At the top of the page under the menu tab click learn more and there's everthin ya'ens need ta know and it's the right information not the stuff that's gonna tell ya'ens that ya'ens only have 3 years ta live.  I made that mistake and went 2 years believin what I had read had no hope or faith.  Please search deep in ya'ens self and restore Faith and Hope and stay here with us and no more GOGGLEIN . Now ya'ens take care and ya'ens have found the place tgat will change ya'ens life and also will restore the light in ya'ens life . 
    Ya'ens friend 
    Lorrie 4 years ago
Nancy Creamer

Nancy Creamer

Well today I finally figured out how to get in here with you all. I was diagnosed in 2012 with copd and non-Hodgkin lymphoma, husband of 16 years left for another women after that. Went thru chemo 2 years now cancer free, but now at end stage copd. Iโ€™m pretty miserable, canโ€™t do much and Iโ€™m so tired of a runny nose and mucus I could scream.

4 years ago

muddleaged

muddleagedanswered the question Prednisone Usage Concern

A while ago, I noticed that my knuckles would begin to ache. A day or two after that, I would become congested. A day or two later, I would notice much more short of breath. Hmmmm. Any relationship there? To me, it sounded like my knuckles were an …
LungguyAnonymousTom Rand 3 others also answered the question Lungguyand 5 others also answered the question

4 years ago

Anonymous

Anonymous

I'm positive now that Bevespi Aerosphere is not for me!

4 years ago

joney

joney

Thanks be to God I am well today yesterday was a bad day today the wind is not blowing in my face like it did yesterday๐Ÿ˜

4 years ago

Sassycat

Sassycatanswered the question Thinking about a vacation to Mexico.

Where in Mexico? It is huge, and there are many high-altitude cities. As Clipper said, Mexico city is polluted, and I will add, high altitude. If you are thinking of the Riviera Maya or Cancun areas, just make sure you LOVE heat and humidity. The …
AnonymousPenzmagichandsHIcopd - Hawaii State Captainand 4 others also answered the question Anonymousand 6 others also answered the question

4 years ago

Aldussault

Aldussault

Two days of not so good followed by a very good Saturday. I am new to this condition. Some days I deluded myself into thinking I had a wrong diagnosis.  I went one month with no symptoms. They it felt like I was catapulted into the center of a storm.  

4 years ago

Anonymous

Anonymous

clipper, how is everything so far?

4 years ago

Anonymous

Anonymous

Im not sure if my pounding heartbeat is from the Bevespi aerosphere๏ฟผ or the cortisone injectons, Im not to happy with it, Im trying to relax!

4 years ago

Anonymous

Anonymous

4 years ago

Edwin_1818

Edwin_1818

Hello Peers, My name is Edwin. I`ve been a member since 2015, I think my last login was about 2016.  I`ve missed Being
here. I had plenty of friends. But now I have none. Feel free to adding me to your frends list.  


                                                                                             Thanks Everybody !!  I`m Glad To Be Back !!

4 years ago

Forgeti5

Forgeti5

โ˜บ We had company so didnโ€™t start
Art project. Will see what Sunday
Brings.  Getting laundry started now.  Kaya ๐Ÿ’ƒ๐ŸŽถ

4 years ago

Forgeti5

Forgeti5

โ˜บ We stayed home today.  Have
Some free time to myself.  Van is in
Need of mechanic so don't know if
We'll go out Sunday.  Time to do an
Art project. Kaya ๐Ÿ’ƒ๐ŸŽถ

4 years ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. We make every effort to support our members, our medical professionals cannot and will not provide a diagnosis or suggest a specific medication; those decisions should be left to your personal medical team. While we encourage individuals to share their personal experiences with COPD, please consult a physician before making changes to your own COPD management plan.