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| Questions for your Oxygen
Provider |
It is best to rely on oxygen providers that fellow COPD
patients tell you about. The folks in your local COPD support group would be
happy to offer guidance in making your choice.
Expect straight answers to these questions before you make your choice.
- What Type of Systems They Offer
Expect the provider to help you choose a system that meets the flow rate
prescribed by your doctor. “Ask whether they provide both liquid and
compressed,” says Wilson. “Most don’t provide liquid oxygen. You'll more
than likely only be offered compressed." Some will also provide newer
systems of which you have to ask about.
Liquid is a better choice if you are subject to loss of power and/or live
in a mobile home. Make sure you know the features and costs of each system
before you choose. Do not be afraid to ask questions.
- What Extras They Include
The provider should offer a number of cannulas, tubing, swivels,
humidifiers, and other extras with each system. “People need unique
sizes,” says Tony Hamel, a transplant receiver, oxygen user, and member of
the on-line support group COPD International. “Some of the larger ones do
not have as much comfort. But there are light ones that aren’t as hard on
your nose and ears.” Be sure you have enough tubing to move around your
home. Also be sure you have enough swivels to keep it from knotting. Some
provide tubing and cannulas if you purchase oxygen from them. They should
also include batteries. “That’s part of the deal,” says Wilson. “People
often forget about the batteries, and providers sometimes don’t mention
them.”
- If They Offer Training for Both the Patient and the
Caregiver
The best system in the world will not help you if you do not know how to
use it. Ask about getting trained. This training is not only for you but
you for your care-giver as well. Web surveys show that only a third of all
providers include care-givers in their training.
- How Often Their RT Makes Home Visits
Find out if they will arrange to have a respiratory therapist (RT) visit
you at home. The RT will check the flow rate and answer any questions you
have. They often visit once a month.
- How to Keep up the System
You need to ask about any training they offer for you and your care-giver.
As part of your training, an RT will show you how to change and clean the
filters. You will also be shown how to perform other simple chores to
maintain your system. Any extra up keep depends on the type of system you
have. Wilson points out that getting an oxygen system is a lot like
getting a new car. “We think we’re buying a car, but we’re really buying a
service.” “We expect to drive the car. And if it breaks, we expect the
seller to fix it. It’s the same with an oxygen system.”
- If They Respond to Emergency Calls
The only correct answer is “at once, 24/7.” If you have a concentrator,
you should be equipped with a back-up system in case there is a power
outage. Both you and your care-giver should know how to use the back-up
system. You may need to tell the power company in advance that you need
oxygen. They will make sure that you are first to receive power in an
outage. “When the power goes out and you don’t have oxygen, you can’t walk
very far and you can’t think very clearly,” cautions Wilson. The time for
step-by-step crisis planning comes long before a real crisis occurs.
- If They Refill Oxygen Tanks, or if They Outsource
the Job
“Ask if the provider fills their own tanks or sends them somewhere to be
refilled,” says Hamel. “If the tanks have to be sent somewhere, you run
the risk that they won’t be on hand when you need them.”
- If They Arrange for Service During Travel
“Most providers will give you some help when you travel,” says Wilson.
This help does not extend to airline or boat travel. For the most part,
airlines give you little choice. It is either that you use their provider
on their airplanes, or don’t use any at all. Your provider should offer
their service in airports.
For auto travel, select a provider who will offer service at any place. If
you do not arrange for this, or you may have big problems trying to
schedule refills. Compressed tanks may take a week or so to refill in some
places. Some may gladly loan you tanks while they refill yours. The only
problem is that more than likely they will want you to return the loaners.
This means that you would have to return the same way and this may cause
schedule problems. Also, make sure that your car in big enough to fit your
needs.
- How Many Sites and Office Branches They Have
There are two nation-wide providers (Apria and Lincare). Some of the
smaller providers will work with others to help out during travel. Contact
your insurance company to find out about other options. Of course, more
branches mean more ease for you.
- If They Are Accredited
By 2007, all providers bidding under Medicare must be accredited
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